Yasho's scoliosis Operation 2019


06-08-2019 Today the much awaited surgery was performed on Yasho to treat his scoliosis. Surgery started at 08:30 am and went on till 3:30 pm. Surgeon confirms that the operation went well. Ventilator is removed and Yasho still in ICU for monitoring. Our prayers are with the family.

07-08-2019 Update: Yasho seems to be in steady state and he appears to be in the right track towards recovery

Yasho & music


06-01-2019 Yasho had the opportunity to take the Metallophone for a ride early this year. This was specially designed by the students Utah state university for children with limited to no mobility to play music. You can hear Yasho and his friend here: https://www.youtube.com/watch?v=KVHXel9BzWE . To know more : http://mybreathmymusic.com/metallophone

Humble beginnings


29-04-2016 Yasho's Leukodystrophy Foundation has been started. The foundation's main purpose is to improve the quality of life for children suffering from leukodystrophy and efforts will be made to improve research activities for diagnose and clinical treatment.