Yasho & music

06-01-2019 Yasho had the opportunity to take the Metallophone for a ride early this year. This was specially designed by the students Utah state university for children with limited to no mobility to play music. You can hear Yasho and his friend here: https://www.youtube.com/watch?v=KVHXel9BzWE . To know more : http://mybreathmymusic.com/metallophone

1st Board Meeting

29-04-2016 Yasho's Leukodystrophy Foundation has been started. The foundation's main purpose is to improve the quality of life for children suffering from leukodystrophy and efforts will be made to improve research activities for diagnose and clinical treatment.